(no subject)

[ravena_kade]

Dad gained an ounce Saturday night and 4 ounces last night.

I called the cardiologist. I wanted them to go over the Ecco he had on the 16th... the word regurgitation was listed several times. I also wanted I'm checked for fluid. Mostly because I cant tell if he has fluid and his weight just doesn't go down to the 160 They tell me he should be at. I think the last time he weighted 160 was when he was 25 years old. This weight and fluid stuff it pushing my personal anxiety out the window.

They just returned my call...at 3PM. Too late to do anything. I get to up the fluid pills, but watch out for consequences... yeah great. Passing out...and perhaps death... They want to dry him out again. That screws up his GI tract...to be polite. They will call me back with an appointment to get him in there.

The regurgitation means his valves are leaking. They are worse. It could be just because he has fluid. Or it could be that they are causing the fluid. So once he is dried out the we have to go back for another ecco...

Then it could be more meds... or valve surgery on all the valves. Trying not to let this spiral in my head. It means another fall like last year. I wont dwell on that... too much.

Sigh.

Comments

[fbhjr]

Hopefully they can tell if it is a cause or effect.

[disneydream06]

{{{{{HUGS}}}}}

I am keeping good thoughts that things take the easiest/simplest route.
HUGS, Jon

[malterre]

so sorry your answers are in limbo again

[brickhousewench]

My weight fluctuates as much as a pound or two from day to day, and I was pretty sure that was normal. Do you really have to worry if his weight goes up an ounce or two? Worrying about an ounce change seems like you'd be freaking out any time he ate or drank anything.

I think the last time he weighted 160 was when he was 25 years old.

Why do they want a guy in his eighties to weigh what he weighed when he was in his twenties?

The regurgitation means his valves are leaking.

Eighty year old valves, unless they tell you they're supposed to work like new, that might be normal for someone your father's age.

I hate to see you so stressed out about this. *hugs*

[ravena_kade]

I am being told that ounces can matter... and when he was being monitored by the visiting nurses the digital scale would send data over to the hospital and i would get yelling phone calls.

When I was in the cardiologists office at the beginning of the Month I actually said that this is turning into an eating disorder... if you are afraid to gain weight then you dont eat... I was a teenage girl. I know how it works even if Im fat now. The 25 year old NP thought I was being funny.

They used the term severe leaking and that could be causing the fluid. In the end the fluid will stop his heart.

I have been told that the stress is all normal for trying to manage Chronic Heart Failure. It doesn't help that I have no back up for help. That and anxiety runs through the family... and this has just triggered mine to no end..especially with not knowing anything about the job moving...and not being able to get another job as then I couldn't take him to the hospital.. I probably need medication.

[brickhousewench]

when he was being monitored by the visiting nurses the digital scale would send data over to the hospital and i would get yelling phone calls

That's just abusive. Nobody should ever be calling you and yelling at you for something that another grown ass adult did. That's just wrong on so many levels.

I have been told that the stress is all normal for trying to manage Chronic Heart Failure.

But the stress should be on your dad, not you. It's his heart and his health. If he doesn't care enough to manage his own health, there's really only so much that anyone else can do for him.

I just hate to see you so stressed about his bad choices. It's not good for YOUR health.